0-12 months
The Teddy Bear with an Ostomy
1-5 years
Part 1
1-5 years
Part 2
School Age
Teens
Resources
A volunteer-based nonprofit organization dedicated to providing support and education to families and others affected with congenital anorectal, colorectal, and/or urogenital disorders and any other associated diagnosis. www.Pullthrunetwork.org
The Oley Foundation: Striving to enrich the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, and networking. www.Oley.org
Association for the Badder Exstropgh Community: (A-BE-C) is working to make the highest standards of treatment available to all who are affected by bladder exstrophy. Whether you are a parent of a child or an adult with this condition or a member of the medical community, A-BE-C is here for you. www.bladderexstrophy.com
Each year the Youth Rally hosts kids with conditions of the bowel and bladder at college campuses for a 5 night one of a kind camp experience that promotes independence, self-esteem, learning, friendship, and fun. Youthrally.org
How to care for your child's Ostomy at Home
Primary Children's Hospital, Ostomy at Home: Experts created this video to help parents and families care for a child's ostomy at home. This video will teach you about normal digestion, types of ostomies, ostomy pouches, how to empty them, how to change an ostomy pouch, skincare with ostomies, daily care tips, eating to stay healthy and problems that may occur with an ostomy