How Ostomy 101 was Founded

How Ostomy 101 was Founded

The Inspiring story of how 2 people, 1 Ostomate and 1 WOCN, with zero budget and no paid employees, created Ostomy 101 Inc. nonprofit. A free resource used by patients, clinicians, and hospitals across the US and in 50 countries worldwide - at no cost.

ABOUT: Speaker Directory

ABOUT: Speaker Directory

The Speaker Directory is designed to help Ostomy Support Group Leaders find interesting, informative speakers for group meetings.

Gifting Ostomy Bears in Your Area

Gifting Ostomy Bears in Your Area

This sweet little ostomy teddy bear project was started by the Ostomy Support Group of North San Diego County to give comfort to people who undergo ostomy surgeries in the San Diego area. The project started with 8 ostomy teddy bears and quickly grew to thousands of bears gifted through 22 hospitals across the United States and shipped to Ostomates all over the world.

From Ulcerative Colitis Teen to Nurse Practitioner & Mom!

From Ulcerative Colitis Teen to Nurse Practitioner & Mom!

Charlotte was diagnosed with Ulcerative Colitis as a teen and had a total colectomy and j-pouch created shortly after diagnosis. The j-pouch did its job well, but a few years later in routine surveillance testing, Charlotte was diagnosed with Crohn’s Disease. This disease was controlled with medications, and Charlotte became a nurse, got married, and had 2 children. In 2015, however her j-pouch failed, and surgery required the creation of a new and permanent ostomy. Her Crohn’s is currently in remission and she is enjoying all the things that life with an ostomy allows her to do. She continues to work full time as a pediatric nurse practitioner in Michigan, and in her spare time she enjoys baking, re-finishing furniture, and all things artistic.

Improbable Joy

Improbable Joy

Living with an ostomy can be challenging and difficult. In addition to the products of managing your ostomy, attitude and perspective are important tools that are often overlooked. During Kipp’s three cancer journeys, he found joy in the most improbable places and has now written a book documenting those moments that surfaced because of his intention to look. Kipp speaks about his experience and determination to find joy in the most unlikely places.